Welcome….

Welcome to Being Cancer Network, a resource for bloggers & survivors.

  • Access to over 1500 personal cancer blogs (new sites added weekly)
  • Guest posts by other cancer survivors
  • Reviews of cancer books and movies
  • Essays on living with cancer
  • Honor Roll for Excellence in Cancer Writing

I am a two-time leukemia and stem cell transplant survivor, and have been an oncology nurse for 27 years.  This website is meant to help cancer bloggers connect with each other.

Current blog entries continue below:

 ( If you are experiencing any problems, please contact me off-blog.  beingcancer@att.net.  Dennis)

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To Wig Or Not To Wig – a cancer question – Guest Post

shaved-head-20112

Another new breast cancer blog, this one from Sonia Convery who is now cancer-free two years afetr diagnosis.  She writes at courage grace and humor | surviving and thriving after cancer

WIG OR NO WIG –THAT WAS THE QUESTION (subtitle: Wiggin’ out over losing my hair)

At my first chemo in June 2011, my chemo nurse, Cathy, told me I should expect to start losing my hair approximately 14-17 days after that first treatment. Sure enough, around that time, I started noticing bunches of my hair coming out when I showered. I had already made the decision that, when the time came, I would shave my head. Now, 2 weeks after my first course of Taxotere, Carboplatin, and Herceptin, that time had come. My Oncologist had given me the name of a beauty store that sold wigs and would shave my head at no charge. Other patients told me that I should visit the beauty store before I lost my hair and pick out a wig that would match my current hair color. So, before the big day, I went to the store with my partner and my Mom and my youngest daughter (she was about 2 ½ years old at the time and totally oblivious to what was really going on). The ladies there were very sweet and they helped me pick out a wig that looked flattering and gave me support and encouragement. At this point, everything was still pretty surreal to me and I couldn’t imagine what it would be like to be without my long, wavy hair that I had had for so long. I had to tell my oldest daughter, Jada, that I would be shaving my head to prepare her for the drastic change in my appearance that was coming. She had a hard time with it and I had to tell her that, in order for me to get better and the medicine to work, this is what I had to do. I assured her that it would grow back and told her she and I could have fun picking out different scarves and hats for me to wear. I asked her if she wanted to be there with me when I shaved my head and she answered with an honest “no.” I was more worried about how she was going to take it when I was bald than how I would deal with it.
The morning before I shaved my head, I took pictures with the girls. I told Jada that today was the day and she gave me a big hug. Kayla, of course, had no clue what was going on, thank goodness.
Zetti and I went back to the beauty store and off came my hair. It didn’t take very long and Zetti took a few pictures during the process. At one point, the hairdresser had shaved the sides of my head and left me with an awesome mohawk. It was funny yet sad at the same time. I still couldn’t believe I had cancer, let alone that I would now be bald for who knew how long.
As I was leaving, the ladies at the shop wished me good luck and told me to be sure to wear a nightcap, because my head would get very cold at night. I put on a hat that I had brought with me and left with the wig I had purchased, along with a cute new nightcap, in a bag. I felt, well, I wasn’t quite sure what I felt. Zetti suggested we go get some lunch and we drove to Wilton Manors to find a place to eat. I still hadn’t put on the wig. We parked and she took a picture of me with my shades on and my sparkling new bald head. I had to admit, when I saw it, I looked pretty good. Demi Moore in G.I. Jane popped into my head. Maybe this wouldn’t be so bad after all. We got out of the car and I put the wig on. It felt weird. Zetti took a couple of pictures and I looked ok. It was a hot day, so I decided not wear the wig and just wear my hat to the restaurant. We sat outside at Rosie’s Bar & Grill and ordered lunch. After a while, it was just too hot outside and I made the bold move of taking off my hat. I thought everyone would be staring at me and felt very self-conscious at first. Zetti told me I looked really good and took another picture of me – I did look good. We had a really nice lunch and went home.
When Jada came home from school that day, I had my hat on. I asked her if she was ready to see my new look and she asked me to wait a minute. When she was ready, I took off my hat. She started to cry. I hugged her and told her that I was fine and that everything was going to be alright. My supervisor, Pamela, dropped by at that moment and immediately started taking pictures of my bald head on her i-phone. It helped having her there to distract Jada and make the moment a little less serious.
I eventually became really comfortable being bald. It was liberating – not having to worry about having a bad hair day or spending all that time in the morning getting ready. I found I was more comfortable wearing hats and actually never wore the wig I bought. I donated it to my Oncologist’s office for them to pass on to someone else who needed it.
My hair is growing back now and, believe it or not, there are days I miss being bald. I learned not to be so self-conscious about how I look and not care so much about how others perceive me. It was a really great learning experience. Bald really is beautiful, and so are all of my sisters that I have the honor of sharing this difficult journey with – wig or no wig.

~from: courage grace and humor | surviving and thriving after cancer

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Colonless – young cancer survivor – guest post

colonless

We last heard from Reagan Barnett a couple of years ago.  She has a new blog now that focuses on colon cancer, genetic cancer syndromes, and young adult cancer issues. In the world of cancer blogging, colon survivors probably don’t get their due.  Cancer blogs mirror incidence of a particular cancer but not always.  Aggressive cancers are underrepresented sometimes.  Genetic cancer syndromes such as Lynch’s are probably more so.  Reagan is a sparkling voice for young adult survivors.  Her new blog is called When My Genes Don’t Fit | Living With a Genetic Cancer Syndrome

Colonless

I remember standing in front of the hotel mirror at 5:00am on the morning of August 6, 2008. I held my shirt up and traced my fingers over my belly button for the last time. It was the last time my abdomen would ever look like that. The last time I would ever see the belly button I was born with. I would never again wear a bikini or change in a locker room with out being acutely aware that I am different. And on that morning it hardly mattered, though I knew later it would. Because the other thing on my mind was that on the other side of my skin, behind that belly button, was a tumor the size of an apple core. And that tumor had been robbing me of the chance at a healthy life. It had secretly run my life for the past 5 years, but now I knew it was there. And that morning was the morning that it was going to be removed. I had a 7:00am surgery scheduled with my doctor at Johns Hopkins, and I was both terrified and eager. Continue reading
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Cancer Doesn’t Discriminate – another UK guest post

coping BigC

It’s raining outside and a big killer snowstorm is on its way from Kansas.  I opened my email this morning to find another interesting blog from the UK.  This one is from an osteosarcoma survivor named Becky McGuiness.  Like the previous blogger, Becky can be a little quirky.  I find this little gem in the sidebar under Popular Posts.  Coping with the BIG C. (That’s cancer to you and me.) is definitely worth a visit.

Cancer doesn’t DISCRIMINATE,
if anything it manipulates!
The first day your diagnosed,
Is like someone’s reached in and stole your soul, 
your heart and happiness all in one go.
You nearly feel you can’t breathe,
With the disbelief of what your
Feeling.
I’ll never forget that day I was diagnosed, 
how I felt,
How fast time went by.
That moment in time it’s like a blur.
You start whelming up with emotions,
Rushing around your head like someone switched on a button!
And you suddenly feel the most horrendous
Emotional pain with thoughts on
Overdrive.
Will I survive???
What’s the percentage for survival rates with the cancer I have?
I’ve never wanted to know so many statistics,
trying to work it out mathematically and 
concluding that with the probability I’ll get worse.
It’s easy to say think positive like the Majority of people say to you with a serious illness 
BUT it’s very HARD to re-wire your emotional Thoughts at that moment in time.
Your only human,
your instinct Kicks in to cope with the bone cancer.
Even if you get the prognosis of full remission,
There is always the fear of getting a different cancer from all the radiation treatment
And X-rays I’ve had.
IT’S A CATCH 22! 
BUT WHAT I’M
I TO DO! :-(

from: Coping with the BIG C. (That’s cancer to you and me.)

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Interminable Medical Stuff – Cancer in the UK – guest post

eclectic chicken

One of the most interesting things for me is the variety a ways in which cancer survivors find different ways to express themselves.  We allOn have cancer but we find different voices to express it.  This author, who goes by the moniker Eclectic Chicken, has been a longtime blogger.  But her original subject matter morphed into her cancer journey shortly after her diagnosis with non-Hodgkins lymphoma.  She sends out her blog from the United Kingdom.  Check out changeling times. Take care, Dennis

Interminable medical stuff…. February 8, 2013

What’s that?

You wanted a blog about my medical emergency vomiting skills and what you got was a ramble about the National Curriculum?

Sometimes dear reader(s) [in case both of you look in on the same day]… you are so predictable.

Meg has been at home… originally with the intention of covering a day and evening where Jane was in London – but the London trip was cancelled so Meg just made herself generally useful – keeping me entertained, lifts to appointments, distracting the boy and the dog (sometimes at the same time) and cooking me things I fancy to eat.

This time she caught me on my steroid days on which, if nobody feeds me, I will eat my own feet and my elbows too.

Her final days cooking was THE. MOST. AMAZING. cake. Continue reading

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Next Steps

Fighting cancer may be easier when you break it down into smaller steps.  For breast cancer survivors the journey can be composed of multiple stays since radiation, chemo, and surgery may be involved.  Alexis is a 39 year old mother who blogs at My Breast Cancer Battle…and Beyond…..

Next Steps….

I seem to do better when I look to the next step. What will happen next? I am worried what will happen when I am done with radiation and I am waiting for the reconstruction? What kind of appointments will I have? Also I know there is so much out there on what tests to get what not to get. I want to know all of this now! I know it is bad and not even something I should be thinking of right now, but I want to know what will happen long term.
I have also been thinking a lot of my mother. I think her doctor was an idiot and if he would have done some testing on her when she first was sick with the cough maybe she would have been with us longer. For that I am just plain angry. But this is one of the reasons why I keep going to the long term.
When my mother was 32 she was diagnosed with stage 3 ovarian cancer. Her mother had passed away from it when she was 43 also. I don’t think my mother ever thought she would get cancer again (if she did she never told me) she was very good about always going back to the gynecologist for her checkups and getting her CA-125 checked. She wouldn’t even switch doctors because he was the one that she felt saved her. She was also very on top of me always going to get my annual exam and when it came out that woman who were on the pill had a less of a chance of getting ovarian cancer she came home and told me to go on the pill.
Again breast cancer was the furthest thing on our minds. I have been thinking a lot of my mom during this whole thing. I feel like I should celebrate the ending of Chemo on Wednesday so way but I am not sure, what am I really celebrating the end of Chemo means that I get to go onto the next step surgery.
Steps I need to remember baby steps…with each baby step it will bring me closer to the main goal NED.

from: My Breast Cancer Battle…and Beyond…..

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